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Bone Pain

Domanda

Our 8-year-old is complaining that his "bones hurt." His physician thinks it may be "growing pains." Additionally, he has frequent pneumonia, stridor, recurring fevers, and a G-tube. He periodically complains that his stomach hurts after eating and this is immediately followed by diarrhea. Have you come across complaints of bone pain before in children with CdLS? If so how can I best seek medical treatment?

Risposta dei nostri esperti

I think I would have doctors make sure that his Nissan fundoplication is still working, if he has one. It sounds like he's having reflux. It is possible that some of his "bone pain" could be GI pain. Regarding the bone pain, I have not come across this with CdLS but many of the children might not be able to verbalize this. There are such things as growing pains, but usually you rule out everything else first. Make sure there's nothing swollen, hot or red in his joints.

TK 7-13-10

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Trova altre pagine che condividono lo stesso argomento di questa pagina Pain and Behaviour 10 Pain and Behaviour 14 Pain and Behaviour 3 Growth in Childhood 2 Growth in Childhood 15 Growth in Childhood 5 Feeding and Dental Difficulties 5 Feeding and Dental Difficulties 50 Feeding and Dental Difficulties 14 Self-injurious and aggressive behaviour 3 Self-injurious and aggressive behaviour 14 Self-injurious and aggressive behaviour 25 Mouth, nose and throat 14 Mouth, nose and throat 3 Sensory processing 2 Sensory processing 2 Reflux 3 Reflux 37 Reflux 9 Cognitive and behavioural characteristics in CdLS 2 Cognitive and behavioural characteristics in CdLS 9 Cognitive and behavioural characteristics in CdLS 9

Raccomandazione

Pain and Behaviour

R18

As pain can easily remain unrecognised in a child with CdLS, all care providers should be aware of the different manifestations and the possible sources of pain. Specific tools to assess pain are recommended.

Raccomandazione

Reflux

R32

Consider always gastro-oesophageal reflux disease (GORD) in any individual with CdLS owing to its frequency and wide variability in presentation, which includes challenging behaviour.

R33

Modification of nutrition and proton pump inhibitors (PPI) are the first-line treatments of GORD. Anti-reflux medications need to be used to their maximum dosage. Surgical interventions for GORD should be limited to those individuals with CdLS in whom nutritional and medical treatments have been unsuccessful or airway safety is at risk.

R34

If GORD symptoms persist, endoscopy should be strongly considered whilst an individual with CdLS is still in paediatric care.

R35

Surveillance for Barrett’s Oesophagus needs to be discussed with and decided together with the family, balancing the potential gain in health and burden for the individual with CdLS.

Disconoscimento legale

Si prega di prendere nota che il servizio Chiedi all'esperto è composto da professionisti volontari in varie aree di interesse. Le risposte non sono considerate una consultazione medica, comportamentale o educativa. Chiedi all'Esperto non è un sostituto per la cura e l'attenzione che il medico personale di tuo figlio, lo psicologo, il consulente educativo o l'assistente sociale possono fornire.

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Bone Pain

Domanda

Risposta dei nostri esperti

Raccomandazione

Raccomandazione

Disconoscimento legale

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The World Federation of CdLS Support

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