World of the Cornelia de Lange syndrome

World of the Cornelia de Lange syndrome

An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope...

Learn...Learn

CdLS is a rare and complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? We aim to provide some answers.

Learn more...

Tell...Tell

CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey. Share your stories and hear those of others.

Share your story

Support... Support

You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

Connect yourself

Ask...Ask

We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.

Ask a question

Expert...Expert

During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you've also learned something that can be of value to others.

Share your knowledge...

PanelL2.png Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

Find others with CdLS...

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.