The International Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.Register to CdLS World to ask a question to leading CdLS doctors or if you want to be connected to other families or caregivers.
All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: umugler@aol.com
By submitting data about yourself and the person with CdLs we can help you better. All information about a you and the person with CdLs is considered confidential and will be released only to authorized people of the CdLs organisation in your country. These people have signed this confidentiallty agreement hyperlink. As such we do our most to protect your personal data, but the federation or it's associated member can not be held liable for theft or accidental loss of your data. You can agree by checking this statement. If you do not agree please do not submit personal data.
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