CdLS World Federation

CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and  counts actually 13 country members (Australia, Canada, Denmark, France, Germany, Italy, Japan, Netherlands, Poland, Portugal, Spain, UK, USA) and is maintaining contact with single  families in more than 45  countries.

What does CdLS World do?

1. Liaise with the International Scientific Advisory Committee (SAC) and to manage it to the benefit of all member countries;
2. To act as a forum of best practice for support group services for people with CdLS, including holding an International Conference every two years;
3. to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.  

Find below the list of our supportgroup members: 

(please select the country below to see the contact information) 

If you reside outside a country supported by our members; we can help to connect you with families from your country (please click here)