What we do

Expert

During our lives with a person having CdLS we learn a lot.
We like to share that with you!
People like you organize a gathering, a conference!
People like you shared their learnings on the internet. Maybe you also learned something that can be of value to others.
we invite you to share that expertise.

World Conferences

Together, each two years, we organize a international conference on CdLS. Here experts on all the many area's (topic's) on this complex syndrome gather. We learn, gather en reach-out to all.