Welcome, please tell us more

Thank you for your interest in the Cornelia de Lange syndrome (CdLS). The Website you have just registered on is meant to help and inform about this rare syndrome.

We would like that this website helps you well and to serve you best we would like to, kindly, ask you the following;

1. If you would like to join one of the associations of the world federation; contact information is required! By sending the email below you will inform the group that best matches your Country and Language
2. If you would like us to contact you more personally (by Email or Facebook) please mark this in this email form, likewise if you like to be connected to other families in your proximity or with the most similar situation so you can share stories and experiences; mark the corresponding box
3. If you would like to ask questions to one of the CdLS Experts some more information about the person with CdLS (if appropiate) is needed by the experts,

Hello $sender.first_name, let's get to know each other better...

Can you help us complete your registration by providing some additional information?

1 - Which community?

Participants participate within a community where you feel (or can start to feel) most at home

Which of our communities could YOU join?
--Make your choice!-- Cornelia de Lange foreningen CdLS Foundation UK and Ireland Asociación Española Síndrome de Cornelia de Lange (AESCdL) Canadian CdLS Foundation (CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה Comunidad Chile del Síndrome Cornelia de Lange Arbeitskreis Cornelia de Lange Syndrom e.V. Comunidad Argentina del Sindrome Cornelia de Lange Associação Brasileira Síndrome Cornélia de Lange Ass. Naz. di Volontariato Cornelia De Lange ONLUS Comunidad du Americas Central del Sindrome Cornelia de Lange Rarissimas - Associação Nacional de Deficiências Mentais e Raras Vereniging Cornelia de Lange syndroom ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce Communities for people connected by CdLS in Japan the Cornelia de Lange Syndrome (CdLS) Foundation USA The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA) Fundación CdLS COLOMBIA Communities for people connected by CdLS in South Korea -------- The World Federation of CdLS Support My desired community is not listed... I feel connected to several Ik feel connected to all of them

My desired community;

The named group(s) may contact me!

2 - Your motivation

Please tell us about your motivation for becoming a member.

On this website it is about the diagnosis:

Cornelia de Lange Syndrome

I am family/carer of someone as the diagnosis indicates.

Details about your 'Waihona' (the person you care for and care about)

First name

Surname

Date of birth

What is your relationship to the person you care for?

I am a supporter (Friend, Doctor, Teacher, Caregiver, Researcher, Other)

3 - How can we help, how can you help?

How can we help, how can you help?

I am open to connecting with others.

I have a question or offer my help/expertise.

4 - Finally

Our organisation takes your Privacy seriously. We do not want to send unwanted messages.

I hereby consent to emails being sent to me in accordance with privacy laws.

Note that your request for approval for this website must be made by someone. We will forward your request to someone from our community (based on the country you live in and the language you speak). This person selected by us will contact you via email after you send this request!

The button above will become active if you have ticked at least one of the above options. Please take the time to answer these questions, we will always treat your information with the utmost care and discretion. As most of us are volunteers, it may take some time for us to approve your request, so please be patient.