CdLS World Federation

All over the world people; Parents, Sisters, Brothers, Family, Doctors, Caretakers, Educators and others, get together in small groups. These small groups are about Cornelia de Lange syndrome, that's what unites them. Many of these groups have united in a federation; CdLS-World. So that's what we are: a federation of support groups from all over the world!

Support

You've learned your child or a person you care for has CdLS. It is a very rare decease, so odds are that it is difficult to find the support you are looking for. Support that knows about CdLS! Here we provide you with links to support-groups most nearby. Come and join these groups, they are here to support you.

Meet

Worldwide there are many in the same situation as you are. Meet these people, if they connected to us we can help you to find them. Maybe you are looking for meeting someone nearby.

Or look for someone who experiences a similar challenge?

If you connect to us we can connect you to them.