Why you should join us

We all got involved with Cornelia de Lange syndrome for different reasons; we have CdLS, we are parents, we are brothers or sisters, we are family or friend, we are caring for a person with CdLS, we are doctors, we are teachers, we are researchers, we are curious...
And because we are this we understand the importance of sharing our experience!

You will have something to share as well, maybe just that you are 'involved'... but by seeing (reading), talking (writing), learning and sharing we will make life with CdLS more beautiful, that is our dream.

So please join our online community, it is free

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About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.