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CONFERENCE FOR FAMILIES

You can attend lectures about the many different aspects of Cornelia de Lange syndrome.

The aim will be that you really understand this without required medical or other complicated knowledge.

CONFERENCE FOR DOCTORS AND CAREGIVERS

For professionals that want to learn more about how to treat and/or provide care for people with a rare disease like Cornelia de Lange Syndrome.

The lectures will be provided by professionals that have specialised in a rare disease like Cornelia de Lange syndrome.
The goal is to provide in depth insights to help you to provide the best possible treatments and care to your patients and families

CLINICS - INTERCONSULTAS

En estas clínicas las familias pueden concertar citas para consultas 1:1 sobre un tema de su elección. Tendrán una clínica con expertos en este tema

WORKSHOPS FOR PARENTS, SIBLINGS AND CARERS

CLOSING DAY OF THE WORLD CONFERENCE

We will celebrate, families and professionals together, for a better life and future.
Together with the other families enjoy Bogota and get to learn each-other