Cornelia de Lange Syndrome

Last modified by Gerritjan Koekkoek on 2018/01/11 18:43


World of the Cornelia de Lange syndrome

An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope...


CdLS is a rare and complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? We aim to provide some answers.

Learn more...


CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey. Share your stories and hear those of others.

Share your story

Support... Support

You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

Connect yourself


We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.

Ask a question


During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you've also learned something that can be of value to others.

Share your knowledge...

PanelL2.png Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

Find others with CdLS...

Created by Administrator on 2009/09/09 00:00