Why are we doing this?


Families all over Europe are looking for answers and support. Together we can do more. Bringing together families and experts from all over the world will allow us to learn, discuss and improve how to handle the different challenges that come with the syndrome

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org