Membership » Welcome, please tell us more

Welcome, please tell us more

Modifié par Gerritjan Koekkoek le 2014/09/04 12:11

Thank you for your interest in the Cornelia de Lange syndrome (CdLS). The Website you have just registered on is meant to help and inform about this rare syndrome.

We would like that this website helps you well and to serve you best we would like to, kindly, ask you the following;

  1. If you would like to join one of the associations of the world federation; contact information is required! By sending the email below you will inform the group that best matches your Country and Language
  2. If you would like us to contact you more personally (by Email or Facebook) please mark this in this email form, likewise if you like to be connected to other families in your proximity or with the most similar situation so you can share stories and experiences; mark the corresponding box
  3. If you would like to ask questions to one of the CdLS Experts some more information about the person with CdLS (if appropiate) is needed by the experts,

Créé par Gerritjan Koekkoek le 2011/12/04 08:04


CdLS impressions


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