Let us learn from you

Hello , welcome to cdlsworld.org

We are pleased to see that you are interested in the Cornelia de Lange syndrome (CdLS). You can find a lot of information on this website, information that is needed so much for families, professionals and other people involved around the world.

After you have finished your registration on CdLS-world, you can:

  • read experiences of others, without limitations;
  • help yourself and others by asking your question to the expert;
  • help answering questions as a professional;
  • become member of a support group in your country;
  • get in contact with other families.

Let us learn from you

As you will probably know, the knowledge about CdLS is far from complete. This knowledge will become better and more complete in time. Professional interest and involvement, combined with the practical, everyday information given by familymembers will spur the improvement of knowledge and raise awareness around the globe.

Help yourself and others, tell us more about yourself and your interests for CdLS.

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.