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care-intensive

  • care-intensive: a lot of information is needed. A care-intensive person is somebody with a physical, mental or behavioural disability (or a combination thereof) and being seldom seen like with a rare condition must get the special cure or care that most people do not know about,
  • care-intensive: Because of the rare aspect of a rare condition  family members are often, (forced to be), the advocate that can help by being better informed as their cure or care providers,
  • care-intensive: Because of the rare aspect of a rare condition  family members are often, (forced to be), the advocate that needs to ask these questions for the better of their family member (or themselves!),
  • care-intensive: a word that we came up with, with which we focus on the experience of the care with a rare condition  rather than the diagnostics.