Informazioni

Reflux

Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con sindrome di Cornelia de Lange.

The most common and serious gastrointestinal problem in CdLS is reflux, also known as gastroesophageal reflux disease (GERD, or 'Gastroesophageal reflux disease').

In GERD, there is weakness of the muscles above the stomach that allows stomach acid to flow back into the oesophagus (esophagus) and, after some time, this causes increasingly severe pain (heartburn).

Raccomandazione

Reflux

R32

Consider always gastro-oesophageal reflux disease (GORD) in any individual with CdLS owing to its frequency and wide variability in presentation, which includes challenging behaviour.

R33

Modification of nutrition and proton pump inhibitors (PPI) are the first-line treatments of GORD. Anti-reflux medications need to be used to their maximum dosage. Surgical interventions for GORD should be limited to those individuals with CdLS in whom nutritional and medical treatments have been unsuccessful or airway safety is at risk.

R34

If GORD symptoms persist, endoscopy should be strongly considered whilst an individual with CdLS is still in paediatric care.

R35

Surveillance for Barrett’s Oesophagus needs to be discussed with and decided together with the family, balancing the potential gain in health and burden for the individual with CdLS.

Reflux

Raccomandazione

le nostre domande e le risposte dei nostri esperti

Constipation and G-Tubes

GI - Gas and Prilosec

Fundoplication Alternative

Nissen fundoptical

Asthma

Hiatal Hernia Treatment

Colic

Reflux and Allergies

Gastroenterology (Feeding)

Reflux and Tooth Decay

Biopsy and reflux meds

G-tube and Formula

GI Issues

Chronic GI Pain

Bone Pain

Feeding and Dysphagia

Nexium Use

G-tube Removal

GI Medications

Fundoplication Risks

Dietary considerations for reflux

GI Issues related to Mouth Odor/Teeth Darkening

Stipsi e alimentazione

Nissen Fundoplication Undone

Fundoplication consideration

Weight gain and CdLS

Gastroenterology-Bile

Prilosec Side Effects

Reversing a Nissen Fundoplication

Abdominal pain

Barrett's esophagus

Reglan Use

Life Span of Nissen Fundoplication

GI Medication Potency

Hip Issues (Back arching)

Reflux - When to Test

Diet for feeding issues with Reflux

Feeding Tubes

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