Why sign up?


We all got involved with Cornelia de Lange syndrome for different reasons; You have CdLS, You are a parent, a brother or a sister, You are a family-member or a friend. Or You are caring for a person with CdLS, a doctor, a teacher or a researcher, You are curious... 

And because we are; we understand the importance of sharing our experience!

You will have something to share as well, maybe just that you are 'involved'... but by seeing (reading), talking (writing), learning and sharing we will make life with CdLS more beautiful, that is our dream.

So please signup for our online community, it is free

Join our community!
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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org