CONFERENCE FOR FAMILIES
You can attend lectures about the many different aspects of Cornelia de Lange syndrome.
The aim will be that you really understand this without required medical or other complicated knowledge.
CONFERENCE FOR FAMILIES day Miércoles
09:30 : 10:10
Opening ceremony of the XI CDL World Congress. Official presentation of the conference, local authorities, President of the Congress, representatives of the organization, President of the World Federation, President of the SAC.
Joana Mendivelso
David Axtell
Feliciano Ramos
10:40 : 11:00
A introduction of what makes it so special that your child is having a RARE disease...
Sandra Yaneth Ospina
14:30 : 14:50
Tonie Kline
Natalie Blagowidow
15:30 : 16:00
Tonie Kline
Natalie Blagowidow
Paola הודיה Mannucci הראל
David Axtell
Ignacio Zarante
CONFERENCE FOR FAMILIES day Jueves
CONFERENCE FOR FAMILIES day Viernes
08:30 : 08:50
Gerardo Restrepo
11:40 : 12:00
Juan Pié
