The World Federation of CdLS Support

The World Federation of National CdLS Support Organizations (CDLS World) is a not for profit voluntary HUB of world-wide organisations and communities united by Cornelia de Lange syndrome with one common mission to reach out, provide help and give hope.


Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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