CdLS Foundation UK and Ireland
In the UK & Ireland the Foundation is run entirely by volunteers - including parents and professionals, plus a part-time Office Administrator. Trustees are elected, or re-elected at the AGM. In addition, we have regional points of contact the Regional Volunteers.
Registered Charity No. 1054033.
mission
The CdLS Foundation UK & Ireland is a family support organisation which exists to ensure early and accurate diagnosis of CdLS throughout the world, promoting research, and enabling individuals, families, friends and professionals make informed decisions and plan for the affected person’s present and future.
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