pre-conference workshops

So, you just learned your child or grandchild has CdLS – Now What? 

Join CdLS veteran parents who will share their lived experience and answer the type of questions you might be afraid to ask of anyone else. What can I expect/hope for my child? What will the school/social experience be like? The CdLS Medical Director will also be present to answer any questions you may have. 

Want to know more – take the discussion offline to the “Discussion Tables”.

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins. 

This presentation will be uplifting, interactive and educational, as  well as provide a good basic understanding of some important facts.  

Topics of discussion include Transition, Employment, Financial,  Government Benefits, Special Needs Trusts and Guardianship, and building  a lifelong support network.

Zoom is required to attend this session. Please be sure to have it downloaded before the event begins.

This workshop will review the range of psychotropics used to treat challenging behaviors in children with CdLS. The categories of medication to be discussed include stimulants/alpha agonists for ADHD/hyperarousal states; SSRIs and other antidepressants, antianxiety agents for mood disorders; mood-stabilizers for bipolar disorders and neuroleptics for self-injury, aggression and psychosis. 

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins. 

This workshop will review the range of psychotropics used to treat challenging behaviors in children with CdLS. The categories of medication to be discussed include stimulants/alpha agonists for ADHD/hyperarousal states; SSRIs and other antidepressants, antianxiety agents for mood disorders; mood-stabilizers for bipolar disorders and neuroleptics for self-injury, aggression and psychosis. 

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.

This session is designed to help bereaved parents process and learn to cope with their grief from child loss by: 

1. giving you a framework for understanding the grief landscape and normalizing the range of emotions; 
2. learning about Continuing Bond Theory, discussing how we maintain bonds and how they evolve overtime 
3. hearing from other bereaved parents; 
4. and introducing CourageousParentsNetwork.org as a source of resources - such as materials for supporting bereaved siblings and extended family and bibliotherapy - to help you find your way and move forward.

Zoom is required to attend this session. Please be sure to have it downloaded, before the event begins.