Incontri
the Cornelia de Lange Syndrome (CdLS) Foundation USA
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Beginning on Tuesday join medical experts and researchers in gene-specific workshops to discuss specific challenges that your loved one may be facing. On Wednesday and Thursday, pre-conference workshops are available that address the special needs of specific segments of our CdLS community.

During Conference learn from world-renowned experts in the fields of genetics, gastrointestinal (GI) challenges, and behavioral health. You will have the ability to ask questions and receive answers in real-time. 

See and hear from Board Members, volunteers, staff, and other families. 

Attendees can watch workshops from the comfort of their own homes. Interact with presenters and participate in polls and surveys.



Program of the event

The 2022 CdLS Foundation National Virtual Family Conference is a life-enhancing event that bonds and strengthens the entire CdLS community. The event will unite the broad spectrum of the diverse and dynamic community, including individuals with CdLS, their families, caregivers, professionals, volunteers, and researchers. The Conference will be held from Tuesday, June 21 to Saturday, June 25, 2022.


    Ogni persona è unica!
    Il valore di un sorriso!
    Il potere dell'amore!

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org