Onze kalender

Onze kalender

Hieronder ziet u evenementen over Cornelia de Lange syndroom die waar ook ter wereld plaatsvinden.

Zeldzameziektendag

Meetings

Zeldzameziektendag

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their famili...

Experience stories

Meetings

We are eager to meet each other and learn from each other. See how, when and where we meet...

Research

Research

We are eager to discover new knowledge. This is why we inform you about research.

Themerooms

Themerooms

We have focus groups that discuss interesting topics