Ontmoetingen en Studies

Onze vereniging tracht elk jaar een ontmoetingsdag te organiseren. Eenieder met belangstelling voor het Cornelia de Lange syndroom is van harte uitgenodigd om zich aan te melden voor zo'n dag (let op! het is alleen op uitnodiging).

Daarnaast organiseren wij regelmatig studies waar we met belangstellenden bepaalde themas uitdiepen. Deelnemers leren hier van en kunnen direct met de resulaten aan de slag. Daarnaast kunnen we met de resultaten stukjes informatie aan onze bibliotheek toevoegen.

 

    

Participate when it suits you

We have several participation options that are always open, pick your own time to study or help.


Self study

Emergency care card Cornelia de Lange Syndrome
Information

Translate the guidelines Cornelia de Lange Syndrome

                                                                                                                                                                                                                                            

Whether you're looking for the next family gathering, a online workshop, or just want to see what's going on the world of a rare condition, the calendar of events has all the what, when and where you need.

Below you will see events about a rare condition hosted anywhere in the world.

On this site

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org