Canadian CdLS Foundation

We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS).  We support families, caregivers, clinicians and educators with information, resources and programming.  We increase awareness and early diagnosis to ensure each individual with CdLS can lead a high quality of life.

Our Mission


At the Canadian CdLS Foundation, our mission is to ensure every Canadian born with CdLS  thrives from birth to old age.

Strategies to accomplish our mission

  • Find families impacted by Cornelia de Lange Syndrome (CdLS).
  • Raise awareness and improve early diagnosis of CdLS.
  • Empower families to care and advocate for their family member with CdLS.
  • Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS


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About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

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