Canadian CdLS Foundation
We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS). We support families, caregivers, clinicians and educators with information, resources and programming. We increase awareness and early diagnosis to ensure each individual with CdLS can lead a high quality of life.
Our Mission
At the Canadian CdLS Foundation, our mission is to ensure every Canadian born with CdLS thrives from birth to old age.
Strategies to accomplish our mission
- Find families impacted by Cornelia de Lange Syndrome (CdLS).
- Raise awareness and improve early diagnosis of CdLS.
- Empower families to care and advocate for their family member with CdLS.
- Provide support, resources, and education to families, care providers, educators and clinicians of individuals with CdLS
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
Canadian CdLS Foundation
What we do
Family Support
- We provide support to families impacted by CdLS though outreach services. We connect families with others in their area or those with similiar challenges.
- We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.
CdLS Awareness
CdLS awareness is important to individuals with the syndrome, their families and their healthcare service providers and families. This will increase understanding, appropriate approaches to care and access to services.Early Diagnosis
Early diagnosis is essential in achieving a high quality of life. Diagnosis will:- ensure appropriate diagnostic testing
- ensure proper management of common health conditions associated with CdLS
- enable access to early intervention services including speech and language therapy, occupational therapy, physiotherapy and other essential therapies
- enable timely access to emotional and other supports to families
Participe à la campagne The World Federation of CdLS Support
Soutiens
En savoir plus sur notre communauté...
Nos Volontaires et Supporters
Provincial Family Coordinator- British Columbia
Kim Fenton
Founder & CEO
Jenni Glad Timmons
Family Coordinator
Ariel Lalonde
La collaboration aide....
La collaboration avec d'autres communautés familiales permet de partager des connaissances, de défendre des intérêts, de mettre en commun des ressources et d'accélérer les progrès de la recherche. Ensemble, ces collaborations responsabilisent les individus, amplifient les voix, font progresser les traitements et sensibilisent l'opinion publique, ce qui, en fin de compte, entraîne des changements positifs.
Voir nos partenaires actuels ci-dessous
Cornelia de Lange foreningen
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CdLS Foundation UK and Ireland
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Asociación Española Síndrome de Cornelia de Lange (AESCdL)
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Canadian CdLS Foundation
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=Canadian CdLS Foundation, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/cdlsIsrael/WebHome/logoIsrael2.png?keepAspectRatio=true&height=100&rev=1.3)
(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=עברית, headerIconURL=, headerTitle=(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה , showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Germany/WebHome/LogoDE2.png?keepAspectRatio=true&height=100&rev=1.1)
Arbeitskreis Cornelia de Lange Syndrom e.V.
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Deutsch, headerIconURL=, headerTitle=Arbeitskreis Cornelia de Lange Syndrom e.V. , showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Argentina/WebHome/ArgentinaLogo2.jpg?keepAspectRatio=true&height=100&rev=1.2)
Comunidad Argentina del Sindrome Cornelia de Lange
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Español, headerIconURL=, headerTitle=Comunidad Argentina del Sindrome Cornelia de Lange, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Brazil/WebHome/cdls-fundacao-sindrome-cornelia-de-lange.png?keepAspectRatio=true&height=100&rev=1.1)
Associação Brasileira Síndrome Cornélia de Lange
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Português, headerIconURL=, headerTitle=Associação Brasileira Síndrome Cornélia de Lange, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Italy/WebHome/logo.png?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Ass. Naz. di Volontariato Cornelia De Lange ONLUS
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Italiano, headerIconURL=, headerTitle=Ass. Naz. di Volontariato Cornelia De Lange ONLUS, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Portugal/WebHome/rarissimas_logo.jpg?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Rarissimas - Associação Nacional de Deficiências Mentais e Raras
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Português, headerIconURL=, headerTitle=Rarissimas - Associação Nacional de Deficiências Mentais e Raras, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Netherlands/WebHome/cdls-nl-logo.png?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
Vereniging Cornelia de Lange syndroom
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Nederlands, headerIconURL=, headerTitle=Vereniging Cornelia de Lange syndroom, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/France/WebHome/assoclogo.gif?keepAspectRatio=true&height=100&rev=1.1)
ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Français, headerIconURL=, headerTitle=ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Poland/WebHome/plflag.gif?keepAspectRatio=true&height=100&rev=1.1)
Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=Polski, headerIconURL=, headerTitle=Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce, showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/USA/WebHome/cdls-logo.gif?keepAspectRatio=true&height=100&rev=1.1){kind=logo}
the Cornelia de Lange Syndrome (CdLS) Foundation USA
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The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)
![{showIcon=true, headerCSSIconClass=group-icon, serviceLabel=English, headerIconURL=, headerTitle=The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA), showHeaderStatus=true, tileStatus=[]}](/xwiki/bin/download/WaihonaPartners/Colombia/WebHome/colombia.png?keepAspectRatio=true&height=100&rev=1.1)
Fundación CdLS COLOMBIA
