Kommunitetet

Canadian CdLS Foundation



We are a not for profit charitable foundation registered with the Canada Revenue Agency (CRA Registered Charity # 70726 3885 RR0001), serving Canadians impacted by a rare genetic syndrome called Cornelia de Lange Syndrome (CdLS).  We support families and caregivers, increase awareness and early diagnosis to ensure each individual with CdLS can lead a healthy high quality of life.

Our Mission

  1. Ensure every child born with CdLS in Canada thrives from childhood to old age.
  2. Empower families to care and advocate for their family member with CdLS.
  3. Provide support to families and care providers of individuals with CdLS.
  4. Raise awareness of CdLS in Canada to ensure early diagnosis.

Begivenhedskalender    

What we do

Family Support

  • We provide support to families impacted by CdLS though outreach services. We connect families with others in their area or those with similiar challenges. 
  • We support families in navigating the healthcare system and the education system to ensure their family member has equal access to services they need.​

CdLS Awareness

CdLS awareness is important to individuals with the syndrome, their families and their healthcare service providers and families. This will increase understanding, appropriate approaches to care and access to services.

Early Diagnosis

Early diagnosis is essential in achieving a high quality of life. Diagnosis will:
  • ensure appropriate diagnostic testing
  • ensure proper management of common health conditions associated with CdLS
  • enable access to early intervention services including speech and language therapy, occupational therapy, physiotherapy and other essential therapies
  • enable timely access to emotional and other supports to families

Læs mere om vores fællesskab...

Vores frivillige og supportere

Provincial Family Coordinator- British Columbia

Kim Fenton

Founder & CEO

Jenni Glad Timmons

Family Coordinator

Ariel Lalonde

Opret forbindelse

Følg trin

Ellers skal du kontakte dit nationale ekspertisecenter


Vores kommunitet

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Dansk

Cornelia de Lange foreningen

danmarknorgesverigefinland
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English

CdLS Foundation UK and Ireland

det forenede kongerigeirland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spanien
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English

Canadian CdLS Foundation

canada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

tysklandøstrigschweiz
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasilien
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italien
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

nederlandenebelgium
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

frankrigschweizbelgiumalgeriet
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polen
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

forenede stater
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australiennye zealandmalaysiaphilippinernesingapore
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Español

Fundación CdLS COLOMBIA

colombia

Om indholdet af hjemmesiden

Alle oplysninger på dette websted er udelukkende til undervisningsformål. Det er din læge, der er det rette sted at få specifik medicinsk rådgivning, diagnoser og behandling. Brug af dette websted sker udelukkende på eget ansvar. Hvis du finder noget, som du mener, der skal rettes eller præciseres, bedes du give os besked på: 

Send en e-mail: info@cdlsWorld.org