Comunidade

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)



Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.

The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.

The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.

We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

 

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mission

Calendário dos nossos eventos   

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

Informação de contacto

Gwilym Conran

President

Email: president@cdls.org.au

Phone: +61 409 633 661

PO Box 151, Darwin, NT 0801

Leia mais sobre a nossa comunidade...

Liga-te

Siga estes passos...

Caso contrário, contacte o seu centro nacional de especialização

Rede de peritos para The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)


A colaboração ajuda....

 

A colaboração com outras comunidades familiares oferece conhecimento partilhado, força de defesa, recursos comuns e progresso acelerado da investigação. Juntas, estas colaborações dão poder aos indivíduos, amplificam as vozes, fazem avançar os tratamentos e aumentam a consciencialização, conduzindo, em última análise, a uma mudança positiva.

Veja abaixo os nossos parceiros actuais

 

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Dansk

Cornelia de Lange foreningen

dinamarcanoruegasuéciafinlândia
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English

CdLS Foundation UK and Ireland

reino unidoirlanda
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

espanha
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English

Canadian CdLS Foundation

lblflagcanada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

alemanhaáustriasuíça
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasil
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

itália
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

países baixosbélgica
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

françasuíçabélgicaalgéria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polónia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

estados unidos
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

austrálianova zelândiamalaysiafilipinassingapura
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Español

Fundación CdLS COLOMBIA

colômbia

Sobre o conteúdo do sítio web

Toda a informação contida neste WebSite é apenas para fins educativos. O local para obter aconselhamento médico específico, diagnósticos e tratamento é o seu médico. A utilização deste site é estritamente por sua conta e risco. Se encontrar algo que considere necessário corrigir ou esclarecer, por favor informe-nos em: 

Envie um e-mail: info@cdlsWorld.org