Comunità

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)



Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.

The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.

The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.

We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.

 

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mission

Calendario dei nostri eventi   

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

Who we are

CdLS Australia is a non-profit organisation which is run by volunteers, usually parents, who have a family member with CdLS.The Australian support group was formed in 1981 in Victoria, when three mothers met, and for the first time in many years were able to compare their experiences.The group was incorporated in 1995 and countries supported by CdLSA are Australia and New Zealand, with outreach to Malaysia, Philippines, Indonesia Singapore and other Pacific Nations.We do not receive any regular Government funding, but rely on membership fees and donations to provide support to families.
Sostiene
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Informazioni di contatto

Gwilym Conran

President

Email: president@cdls.org.au

Phone: +61 409 633 661

PO Box 151, Darwin, NT 0801

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La collaborazione aiuta....

 

La collaborazione con altre comunità familiari offre conoscenze condivise, forza di difesa, risorse comuni e un'accelerazione dei progressi della ricerca. Insieme, queste collaborazioni danno potere alle persone, amplificano le voci, fanno progredire i trattamenti e aumentano la consapevolezza, portando infine a un cambiamento positivo.

Di seguito sono riportati i nostri attuali partner

 

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Dansk

Cornelia de Lange foreningen

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English

CdLS Foundation UK and Ireland

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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spagna
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English

Canadian CdLS Foundation

lblflagcanada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

germaniaaustriasvizzera
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasile
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italia
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portogallo
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Nederlands

Vereniging Cornelia de Lange syndroom

paesi bassibelgio
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

franciasvizzerabelgioalgeria
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polonia
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

stati uniti
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

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Español

Fundación CdLS COLOMBIA

colombia

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org