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Translate the guidelines

We are proud that many professionals around the world have written a scientific statement. Now it is up to us to translate it in a language that our families can read and understand to become the beste advocate for their family member.

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Translate the guidelines

Translate the guidelines
Cornelia de Lange syndrome

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Translate the guidelines

We are proud that many professionals around the world have written a scientific statement. Now it is up to us to translate it in a language that our families can read and understand to become the beste advocate for their family member.

The published consensus statement (meaning the scientists all agree on the text) had to be agreed on by publishing it for other scientists to be able to review it.

But scientists use complicated words and therefor it becomes difficult for us to fully understand it, which is important to provide the best care possible!

  1. We asked families in the United Kingdom and Ireland to translate it in English in such a way everbody of them could understand it. With the help of the Birmingham University, that did the translation, these families read it again and again untill they were happy with the result
  2. Then we put the resulting text on this website for review by the international community. This now became the mother version for all other languages.
  3. Then each country translates the mother version into their national language. Also their families read it again and again and continuously improve it. We have a tool on this website that allows countries to translate it topic by topic.

The first jobs are done, we hope more and more languages will be added so we can truly be confident that as many as possible people can use this milestone publication.

You can read the result here, if you do not see your own language ask your national group about it!




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All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org