Cornelia de Lange syndrome
a place to see, talk, learn and share !
Join us Our dream next Conferencefind a answer
Do you need help
Are you new here? Do you find it overwhelming? Start at the beginning and let us, step by step, guide you and introduce you with CdLS.
Our community around CdLS
What can you find here
Guidelines, Know-how's
214
Stories of Parents
490
Questions with Answers
648
National supportgroups
0
More about CdLS
Knowing what your child has is important! What is this syndrome? Why do you get it? How can you treat it? We have collected all available information to tell you!
Read…Share your stories and hear those of others
CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey.
Read…Meeting others
Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.
Read…Ask our experts
We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.
Read…Our vision
A dream for our community
With the Cornelia de Lange World federation we have a dream. To share our dream with you in order to convince you to join us we made this video to show you what seeing, talking, learning and sharing is about.
