Cornelia de Lange syndrome
find a answer
Thanks to working together worldwide we were able to collect a lot of useful information and experiences about the Cornelia de Lange syndrome.
Do you need help
Are you new here? Do you find it overwhelming? Start at the beginning and let us, step by step, guide you and introduce you with CdLS.
Read more…Our community around CdLS
Our national contact points for support
Vereniging Cornelia de Lange syndroom
Netherlands, Belgium
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More about CdLS
Knowing what your child has is important! What is this syndrome? Why do you get it? How can you treat it? We have collected all available information to tell you!
Read…Share your stories and hear those of others
CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey.
Read…Meeting others
Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.
Read…Ask our experts
We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.
Read…La nostra visione
Rari ma più forti insieme
La famiglie italiane in collegamento con il mondo CDLS per sfidare non solo la Sindrome di Cornelia de Lange, ma anche l'emergenza Covid-19
