CdLS?
Understanding your child's condition is crucial! What is CdLS? How is it inherited? What are the best approaches? We provide all the information you need.
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Find Your Answer!
Extensive knowledge about Cornelia de Lange Syndrome is collected on this platform. Use the search function to access research, articles, and stories.
Need Help, New Here?
New here? Feeling overwhelmed? Start from the beginning, and we’ll guide you step by step through CDLS.
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Gerritjan Koekkoek
The way to happiness for people like Rai is through Education and Knowledge of the people directly around him.
Raoul Hennekam
Above all, share information and experiences with each other. Everyone has a little information and all these little bits become a wealth of information. Hugely valuable.
Sylvia Huisman
On the importance of learned experience knowledge, difficult to put into words
Paul Mulder
For me, it is also very instructive to read the experience stories of parents and the input of other experts. It broadens and sharpens your thinking and your actions.
Discover and Share Stories
Welcome to the world of CdLS. It’s a long journey, sometimes dark and confusing, but often filled with joy and light. Writing helps to process.
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Connect with Others
Meet others like you. We organize regular (online) meetups and have active Facebook groups for different regions and themes.
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Ask our experts
We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.
לקרוא...The dream for our community
With the Cornelia de Lange World federation we have a dream. To share our dream with you in order to convince you to join us we made this video to show you what seeing, talking, learning and sharing is about.
