TOGETHER

  


10th World Conference Cornelia de Lange Syndrome 2019

Together experts and families search for answers, find solutions and share best practice. Our understanding of CdLS is increased and families are better able to deal with challenges of raising their children.Together we strengthen friendship, in an emotionally safe environment. Parents are supported and encouraged to share concerns and and celebrate triumphs.

Sibling program

It is very important for us that sisters, brothers and other family members join the family to our event.So parallel to the conference there will be lots to do for them in a separate side program.

02/08/2019

09:00 : 09:30
In order to get reduced entrance fees, we kindly ask the participants to bring with you a document that identifies you as pupils/students if possible.Please think of the weather and wear suitable clothing, bring a rain coat/umbrella or suncap/suncream.
Annette Gensler
Kjell van der Meer
09:50 : 11:01
We take the train ('Ahrtal-Bahn') from Bad-Neuenahr to Remagen...Ahrtal-Bahn (Train)
Annette Gensler
Kjell van der Meer
09:50 : 10:15
We'll take it slow and easy from the train through Remagen to the Peace Museum: 'Bridge of Remagen'. We can enter the Museum at 10:30.The town of Remagen
Annette Gensler
Kjell van der Meer
10:15 : 10:30
Break for some drinks
10:30 : 11:30
The capture of the bridge is known in the annals of the war as the "Miracle of Remagen". General Eisenhower stated that "the bridge is worth its weight in gold". In the days immediately following, the German High Command made desperate attempts to destroy the bridge by bombing and even employing frogmen.
The Idea of the Memorial
Hans Peter Kürten, at that time Mayor of Remagen, had long busied himself with the idea of constructing a memorial. The towers contain an exhibition which recounts the history of the bridge.
The main theme in the Peace Hall applies to everyone:
  • Every day let us work for peace with our mind and heart.
  • Each person should begin with himself.
Peace Museum 'Bridge of Remagen'
Annette Gensler
Kjell van der Meer
11:30 : 13:01
Lunch break and walk to boat
13:00 : 13:40
We'll take it easy a steam downstream to the town of KöningswinterRemagen to Köningswinter
Annette Gensler
Kjell van der Meer
13:45 : 15:15
; WELCOME TO SEA LIFE KONIGSWINTER
DIVE INTO AN AMAZING UNDERWATER WORLD
directly at the Drachenfels, next to the river Rhine
See the underwater world really close
Annette Gensler
Kjell van der Meer
15:30 : 16:20
Annette Gensler
Kjell van der Meer
16:20 : 16:50
Break and walk to Remagen train station
16:50 : 17:00
Annette Gensler
Kjell van der Meer
17:01 : 17:30
Annette Gensler
Kjell van der Meer

03/08/2019

09:01 : 09:30
In order to get reduced entrance fees, we kindly ask the participants to bring with you a document that identifies you as pupils/students if possible.Please think of the weather and wear suitable clothing, bring a rain coat/umbrella or suncap/suncream.
Annette Gensler
Kjell van der Meer
09:30 : 10:10
Annette Gensler
Kjell van der Meer
10:10 : 10:25
Break for some drinks
10:30 : 12:15
; Our today expedition starts here.
You set out at the Geyser Centre on your discovery voyage to one of the world’s rarest marvels. Interactive exhibits, themed play and learn areas and media installations will expand your horizon and let you experience the science that comes with it first hand.
discovery voyage starts at the old quarries
Annette Gensler
Kjell van der Meer
12:15 : 13:01
Lunch break
13:01 : 14:35
; Feel the raw power of ancient nature
Our journey to the Geyser is approaching its destination. We have safely discharged from “MS Namedy” at the “Namedyer Werth” peninsula. A short walk of around 250 metres and we will have reached the Geyser.
Feel the raw power of ancient nature
The “Namedyer Werth” Nature Reserve
Enjoy the lush green of this nature reserve, which is home to an alluvial forest that serves as a nesting ground for a number of rare species of birds.
Annette Gensler
Kjell van der Meer
15:35 : 16:01
; Ship ahoy! our discovery voyage ends by crossing the Rhine.
A river cruise on the Rhine is a delightful experience. Take in the impressive vistas of the Rhine valley and enjoy a relaxed cruise on the most legendary of all German rivers. The cruise offers interesting new sights of the beautiful silhouette of Andernach town, the idyllic vineyards and the “Namedyer Werth” nature reserve.
The boattrrip across the Rhine
Annette Gensler
Kjell van der Meer
16:00 : 16:30
Kjell van der Meer

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.