TOGETHER


  


10th World Conference Cornelia de Lange Syndrome 2019

Together experts and families search for answers, find solutions and share best practice. Our understanding of CdLS is increased and families are better able to deal with challenges of raising their children.Together we strengthen friendship, in an emotionally safe environment. Parents are supported and encouraged to share concerns and and celebrate triumphs.

CdLS World federation council meeting

As each 2 years in the past 20 years of history for the CdLS World community representatives of all the countries around the world will come together and learn best-practices from each other and bring home valuable lessons learned and all the information dissimilated at this conference. This session will be on invitation only, and we will invite people from Australia, Argentina, Brazil, Canada, Colombia, Denmark, France, Germany, Italy, Ireland, the Netherlands, Poland, Portugal, United Kingdom, United States of America as these are the current members of the federation. We also invite families from countries that are not yet member of the CdLS World federation to organize themselves as a national group and apply for membership. When doing so you will also receive an invitation for this meeting.

FEDERATION COUNCIL MEETING

Every world-conference the representatives of each country; that is member of the CdLS World Federation, assemble.They will present and share what the have done and what they are planning to do.This is a 'members-only' meeting for which you must be invited!

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