Juntos


  


10° Conferencia Mundial Síndrome Cornelia de Lange – 2019Juntos, expertos y familias buscan respuestas, encuentran soluciones y comparten las mejores prácticas. Nuestra comprensión de CdLS se incrementa y las familias están en mejores condiciones para enfrentar los desafíos de criar a sus hijos. Fortalecemos la amistad, en un ambiente emocionalmente seguro. Los padres son apoyados y animados a compartir preocupaciones y celebrar triunfos.

cena de gala

03/08/2019

19:00 : 19:10

A word of gratitude of the organization and of the CdLS World Federation.
We hope to announce the next conference in 2021

Jürgen Kegel
Padre de Christian
19:10 : 19:15
Surprise act
19:15 : 19:30

We celebrate the winners of the rewards, during the conference we will award some 'specials'

Celebrate the information ahead...

Sylvia huisman
MD PhD, Amsterdam University Medical Center, Amsterdam, and Prinsenstichting, Purmerend, The Netherlands.
Frank Kaiser
Professor of Functional Genetics and Human Genetics, Institute of Human Genetics, University of Lübeck, Germany
David Axtell
19:30 : 21:30

A nice buffet will be served where eveybody is invited to take what you like! "YYYUUUUMMMMIIEEEE"

A nice buffet to celebrate

Kent Kleinsteuber
19:45 : 21:00

Our children enjoy music. Many of us enjoy music. In our families there are special musical talents.

One of our mothers plays in a real orchestra, this Orchestra is happy to perform on this evening, together with us. Do not worry, you can talk with your friends, get something from the buffet... just enjoy the music as you like.

Het Nederlands Filmorkest

Lars van der Meer
21:30 : 00:00

We will have music and drinks, imagine yourself what will happen...
we end this conference with a big smile...

Look at the joy in our conference in Brazil...

Enjoy the music and see the smiles

Annette Gensler

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