Behavior, what can we see?

  


Behavior, what can we see?

The behavior that is shown with people with CdLS can be confusing, but when understood can give you a wealth of information. It can be another form of communication that, when understood, tells as much as we normally do with words.What is compulsive behavior? What are stereotypical behavior signs? What other forms of behavior do we see. And is it changing when a child develops in a teenager, a young adult to adult?Learn and discuss about it

Meet our experts

We are doing our best to invite those from around the world that can give you the insights you hope for. Both professors, teachers, experienced parents or siblings will discuss the topics for the best quality of life possible. Our motto; TOGETHER!

Paul Mulder

Paul Mulder

specializes in assessment of children and adults with severe and complex autism spectrum disorders, especially supportive communication, social-emotional functioning, sensory information processing and cognitive development in children and adolescents with autism spectrum disorders

He is behavioral specialist at Autism Team Northern-Netherlands, Jonx, the child- and adolescent psychiatry service of Lentis Psychiatric Institute in Groningen. 

He did his PhD on "Cognition, self-injury and autism in Cornelia de Lange Syndrome: their mutual relationships and genetic background.” 

He is behavioral advisor of the Dutch CdLS group and board member of the scientific advisory council of the CdLS World Federation.

Inge van Balkom

Inge van Balkom

was trained as a psychiatrist in Amsterdam and continued her training as a child and adolescent psychiatrist, including a residency in Clinical Genetics. 

She received her medical degree at Groningen University.

From 2006 to date Inge is employed as medical director at Autism Team Northern-Netherlands, Jonx, the child- and adolescent psychiatry service of Lentis Psychiatric Institute in Groningen. 

She is a member of the Global Partnerships in the Epidemiology of Developmental Disabilities, and of the CDC-National Center on Birth Defects and Developmental Disabilities, Atlanta, USA. 

She is a member of the scientific advisory council of the CdLS World Federation.

Marleen Janssen

Marleen Janssen

Marleen is since 2008 Professor at the Department of Special Needs Education at the University of Groningen in the Netherlands. She is specialized in congenital (like with CdLS) and acquired deafblindness. Her research is mainly focused on intervention studies in children and adults who are congenital deafblind, which impact communication, language acquisition, development and learning. 

Innovative instructional methods are used to coach teachers, parents and support workers improving their insights and skills for better interaction and tactile communication. Theories from developmental psychology on attachment, intersubjectivity and self-determination form the basis of these investigations which are performed in classrooms, homes and group home settings.

She has a structural collaboration with Royal Dutch Kentalis, where she worked earlier for 25 years at the school Kentalis-Rafaël, for children with deafblindness.

In her studies Marleen has seen a few children with Cornelia de Lange syndrome. Based on these studies she has presented on the CdLS World Conference in 2013 in Buenos Aires (Argentina).  

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