2020 CdLS Awareness Day


international Cdls awareness day is observed On the second Saturday of may each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Each year, parents, volunteers and others raise awareness with different kind of activities in the whole world.

This year we all have to struggle with the restriction of Covid19. As we are used to face challenges and deal with emergencies we found also for this situation a way for not being alone extending our arms and reaching out to the families around the globe.
Help us to raise awareness and learn more about Cdls


La nostra visione

La nostra visione

Rari ma più forti insieme
La famiglie italiane in collegamento con il mondo SCDL per sfidare non solo la Sindrome di Cornelia de Lange, ma anche l'emergenza Covid-19


Share knowledge, experience, love

Families from the UK, Ireland, Australia and New Zealand share the common experience of CdLS across the world. Whatever you know, whatever you feel, pass it on!

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org