2020 CdLS Awareness Day
international Cdls awareness day is observed On the second Saturday of may each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Each year, parents, volunteers and others raise awareness with different kind of activities in the whole world.
This year we all have to struggle with the restriction of Covid19. As we are used to face challenges and deal with emergencies we found also for this situation a way for not being alone extending our arms and reaching out to the families around the globe.
Help us to raise awareness and learn more about Cdls
Notre vision des choses
SCdL, rares mais plus forts ensemble
Des familles italiennes se sont connectées à la communauté mondiale CdLS pour montrer que nous ne sommes pas seuls avec le syndrome de Cornelia de Lange et que nous pouvons faire face à la Covid-19.
Share knowledge, experience, love
Families from the UK, Ireland, Australia and New Zealand share the common experience of CdLS across the world. Whatever you know, whatever you feel, pass it on!
