2020 CdLS Awareness Day
international Cdls awareness day is observed On the second Saturday of may each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Each year, parents, volunteers and others raise awareness with different kind of activities in the whole world.
This year we all have to struggle with the restriction of Covid19. As we are used to face challenges and deal with emergencies we found also for this situation a way for not being alone extending our arms and reaching out to the families around the globe.
Help us to raise awareness and learn more about Cdls
Nuestra visión
SCdL, Raro pero más fuerte juntos
Familias italianas conectadas con la comunidad mundial de SCdL para demostrar que no estamos solos con el síndrome de Cornelia de Lange y que podemos enfrentarnos a Covid-19
Share knowledge, experience, love
Families from the UK, Ireland, Australia and New Zealand share the common experience of CdLS across the world. Whatever you know, whatever you feel, pass it on!
