2020 CdLS Awareness Day
international Cdls awareness day is observed On the second Saturday of may each year in order to shed light on this often misdiagnosed, little-known genetic syndrome. Each year, parents, volunteers and others raise awareness with different kind of activities in the whole world.
This year we all have to struggle with the restriction of Covid19. As we are used to face challenges and deal with emergencies we found also for this situation a way for not being alone extending our arms and reaching out to the families around the globe.
Help us to raise awareness and learn more about Cdls
Vores vision
CdLS, Sjælden, men stærkere sammen
Italienske familier, der er forbundet med CdLS World-fællesskabet for at vise, at vi ikke er alene med Cornelia de Langes syndrom, og at vi kan håndtere Covid-19
Share knowledge, experience, love
Families from the UK, Ireland, Australia and New Zealand share the common experience of CdLS across the world. Whatever you know, whatever you feel, pass it on!
