Growth

Individuals with CdLS have proportionate small stature. Specific growth charts are available for height, weight and head circumference parameters of boys or girls with CdLS at different ages. Using these, the practitioner can follow growth as compared to other affected individuals rather than the unaffected population. If an individual deviates from the CdLS curve, then specific investigation for occult pathology may be warranted. 

The term "failure to thrive" is not appropriate, and may generate the use of unnecessary calorie supplementation, which results in no increased rate of growth and considerable parental anxiety. Pubertal growth spurts occur at comparable ages to unaffected individuals. Some individuals with CdLS have been found to have growth hormone deficiency, requiring exogenous growth hormone administration, however, without a documented deficiency, the use of growth hormone most likely does not increase final adult height.

Common Growth of Children with CdLS

Children are often assessed by their weight and height on growth charts that show the average growth rate for typical children. Since children with CdLS are often compared to a typical child’s growth rate, many are incorrectly diagnosed with “failure to thrive,” a condition that focuses primarily on weight gain. 

Often, parents also consider placing the child on a high-calorie formula or food supplement and/or increasing the number of feedings per day to spur growth. Presently, there is no clear-cut evidence that either have longterm benefits.

What medical professionals unfamiliar with CdLS do not recognize is that although children with CdLS gain weight slowly, their growth is usually in proportion to their height throughout their lives.

To better educate parents of children with CdLS and their health care providers , CdLS Foundation Medical Director Antonie D. Kline, M.D., and her colleagues developed gender-specific growth charts based on research and data collected over many years.

On the following pages you will find the male growth charts;

Males

Height

From birth to 36 months

Male height (to 36 months)

From 36 months to adult

Male height (>36 Months)

Weight

From birth to 36 months

Male weight (<36 months)

From 36 months to adult

Male height (> 36 months)

Head measurements

Male head measurement

Female:

Height

From birth to 36 months
Female Height (<36 months)From 36 months to adult

Female height (>36 months

Weight

From birth to 36 months
Female weight (<36months)From 36 months to adult

Female weight (>36 months)

Head measurement

Female head measurements

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