Get connected


You never have to feel alone, the CdLS World Federation can connect you with other CdLS families in your country or beyond.

We have multiple options for you to get involved;

  • Connect to one of our member-supportgroups who are active in many countries. You can find contact data for each of our members on this website
  • If you have questions and would like to consult a expert; you can register and post your questions...
  • Just register on this website, tell us more about yourself. We will help you from there to find your best option; select one of our support groups and you will have the opportunity to connect to families of that supportgroup

Find below the list of our supportgroup members

(please select the country below to see the contact information) 

Australia (Malaysia/ New Zealand)Portugal
DenmarkUnited Kingdom Ireland
France (Switzerland)United States of America
JapanCentral America

If you live in a country not listed here; we can help to connect you with families or support groups from your country (please click here) 

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.