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News about CdLS


We will post the news that becomes available about CdLS

Join Us for International CdLS Remembrance Day

31 jan. 2025

Join the global CdLS community on February 12, 2025, as we come together to honor and remember our loved ones on International CdLS Remembrance Day.

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Resolution for People Living with a Rare Disease adopted by the United Nations

22 dec. 2021

A global grassroots campaign led by people living with a rare disease and their families has successfully secured the adoption of the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

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2021 CdLS-Day Latino Challenge

3 mei 2021

The CdLS Network of spanish speaking countries and CdLS Colombia invite you (CdLS families) to join their 'challenge' to give lustre to the International Day for CdLS (8-May)

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the Rare 2030 young citizens ask...

28 feb. 2021

We are the Rare 2030 Young Citizens, representing a new generation of advocates, patients and actors in the rare disease community. We come from diverse backgrounds, different countries and have different experiences of rare diseases – as patients, young parents, doctors, students, and junior policy advisors.

We strongly ask the politicians to act today to make possible by 2030 what is recommended by us.

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An Open Letter to the Special Needs Sibling

3 nov. 2020

Dear Special Needs Sibling...

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Promotion of Paul Mulder

8 mei 2020

Tuesday 7 April 2020 at 14.00 hrs I was ready; defending my thesis from home behind the laptop. The current situation and measures because of Covid-19, made my PhD ceremony completely different than expected.

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Goodbye to a Legend - Dr. Laird Jackson

22 okt. 2019

It is with heavy hearts that we learned of the recent passing of Dr. LAIRD JACKSON.

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