News about CdLS

A global grassroots campaign led by people living with a rare disease and their families has successfully secured the adoption of the first-ever UN Resolution on “Addressing the Challenges of Persons Living with a Rare Disease and their Families.”

The CdLS Network of spanish speaking countries and CdLS Colombia invite you (CdLS families) to join their 'challenge' to give lustre to the International Day for CdLS (8-May)

We are the Rare 2030 Young Citizens, representing a new generation of advocates, patients and actors in the rare disease community. We come from diverse backgrounds, different countries and have different experiences of rare diseases – as patients, young parents, doctors, students, and junior policy advisors.

We strongly ask the politicians to act today to make possible by 2030 what is recommended by us.

Dear Special Needs Sibling...

Tuesday 7 April 2020 at 14.00 hrs I was ready; defending my thesis from home behind the laptop. The current situation and measures because of Covid-19, made my PhD ceremony completely different than expected.

It is with heavy hearts that we learned of the recent passing of Dr. LAIRD JACKSON.