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Family Empowerment

      
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con sindrome di Cornelia de Lange. 

Quality of life is, next to provide medical 'health' to people with CdLS, provide care, also dependent on the strength and the happiness of the family members


le nostre domande e le risposte dei nostri esperti


                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                                 

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