Behavior, Picking, Pica
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Feeding and Dental Difficulties
Per i genitori, gli assistenti, i fornitori di assistenza sanitaria e gli insegnanti, sorgono spesso preoccupazioni e domande riguardanti la cura e il benessere degli individui con sindrome di Cornelia de Lange.
From infancy to adulthood, feeding difficulties are very common in individuals with CdLS. Preferably, individuals with CdLS should be fed orally (by mouth). However, feeding difficulties may sometimes result in feeding times becoming unsafe, stressful and taking many hours out of the day. In these circumstances, doctors may temporarily supplement an individual’s feeding with a gastrostomy tube.
Raccomandazione
Feeding and Dental Difficulties
R12
In every CdLS individual with prolonged and marked feeding difficulties, the multidisciplinary assessment (from healthcare workers across many disciplines) should consider (temporary) placement of a gastrostomy (surgical opening through the abdomen into the stomach) as a supplement to oral feeding.
R13
In individuals with CdLS who have recurrent respiratory infections, reflux and/or aspiration (breathing foreign objects into airways) should be ruled out.
R14
The palate should be closely examined at diagnosis. In case of symptoms of a (submucous) cleft palate, referral for specialist assessment is indicated.
R15
Dental assessment and cleaning should take place regularly; a more thorough dental examination or treatment under anaesthesia may be necessary.
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le nostre domande e le risposte dei nostri esperti
Diet for feeding issues with Reflux
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Weight Gain
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Dental Implants
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Nipple Feeding
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C. Difficile Treatment
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Reflux and Tooth Decay
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Mic-key site irritation (Site care, gastrostomy button, yeast infection)
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Sensory Integration and Feeding
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Dietary considerations for reflux
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Bruxismo, digrignare i denti
Slow Weight Gain
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Effects of Tegretol on mouth
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Sensory Integration and Feeding
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Gastroenterology (Feeding)
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Suck/Swallow/Breath - Feeding Issues
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Sedation for dental work
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Teeth Grinding
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Pulling out feeding-tube buttons
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Behavior/Diets
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Teeth Grinding
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Oral feeding and G-tube weaning
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Canker Sores
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Receding gums (Wisdom teeth, Gingival grafts)
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Rice Cereal Allergy
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Allergy to Formula
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Feeding and Dysphagia
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GI - Gas and Prilosec
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Brittle Bones
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Dental/Grinding/Sliming
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Lactose Intolerance (Formula Alternatives, Fat Intake)
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Teething
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Obesity
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Medical Needs at School: Feeding, schools, nursing
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Feeding Tubes
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Wisdom Teeth-Impacted
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Teeth Growth
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G-tube and vomiting
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Nissen fundoptical
Introducing Solid Foods
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Ketogenic Diet
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Anesthesia for dental work
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Constipation and G-Tubes
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Caloric intake via feeding tube
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Missing Teeth
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Caduta precoce dei denti
G-tube and Formula
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Behavior/Dental/Molars
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Problemi dentali
Thinning of the hair
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