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Feeding and Dental Difficulties


        For parents, caregivers, health care providers, and teachers, concerns and questions often arise regarding the care and well-being of individuals with Cornelia de Lange Syndrome. 

From infancy to adulthood, feeding difficulties are very common in individuals with CdLS. Preferably, individuals with CdLS should be fed orally (by mouth). However, feeding difficulties may sometimes result in feeding times becoming unsafe, stressful and taking many hours out of the day. In these circumstances, doctors may temporarily supplement an individual’s feeding with a gastrostomy tube.


המלצות

Feeding and Dental Difficulties

R12
In every CdLS individual with prolonged and marked feeding difficulties, the multidisciplinary assessment (from healthcare workers across many disciplines) should consider (temporary) placement of a gastrostomy (surgical opening through the abdomen into the stomach) as a supplement to oral feeding.
R13
In individuals with CdLS who have recurrent respiratory infections, reflux and/or aspiration (breathing foreign objects into airways) should be ruled out.
R14
The palate should be closely examined at diagnosis. In case of symptoms of a (submucous) cleft palate, referral for specialist assessment is indicated.
R15
Dental assessment and cleaning should take place regularly; a more thorough dental examination or treatment under anaesthesia may be necessary.

our Questions and Answers of our experts

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Behavior, Picking, Pica

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Diet for feeding issues with Reflux

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Weight Gain

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Dental Implants

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Nipple Feeding

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C. Difficile Treatment

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Reflux and Tooth Decay

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Mic-key site irritation (Site care, gastrostomy button, yeast infection)

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Sensory Integration and Feeding

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Dietary considerations for reflux

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Teeth Grinding "Bruxism"

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Slow Weight Gain

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Effects of Tegretol on mouth

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Sensory Integration and Feeding

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Gastroenterology (Feeding)

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Suck/Swallow/Breath - Feeding Issues

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Sedation for dental work

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Teeth Grinding

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Pulling out feeding-tube buttons

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Behavior/Diets

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Teeth Grinding

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Oral feeding and G-tube weaning

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Canker Sores

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Receding gums (Wisdom teeth, Gingival grafts)

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Rice Cereal Allergy

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Allergy to Formula

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Feeding and Dysphagia

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GI - Gas and Prilosec

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Brittle Bones

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Dental/Grinding/Sliming

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Lactose Intolerance (Formula Alternatives, Fat Intake)

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Teething

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Obesity

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Medical Needs at School: Feeding, schools, nursing

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Feeding Tubes

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Wisdom Teeth-Impacted

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Teeth Growth

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G-tube and vomiting

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Nissen Fundoplication

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Introducing Solid Foods

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Ketogenic Diet

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Anesthesia for dental work

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Constipation and G-Tubes

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Caloric intake via feeding tube

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Missing Teeth

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Teeth Exfoliation

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G-tube and Formula

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Behavior/Dental/Molars

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Pulling Eye Teeth

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Thinning of the hair

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Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

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