Ask the expert

Life Span of Nissen Fundoplication

Question

It has been recommended that because my child with CdLS had reflux surgery at least 10 years ago follow-up should be done to ensure that the wrap is not coming loose. When I went to the specialist his feeling was that if she is not vomiting then a test is not warranted. Is there written information available that says different?

Answer of our experts

If the child isn't vomiting and there is no evidence of other complications such as esophagitis or lung disease, I would not look to see if the Nissen is intact because there would be no reason to do anything about the result. A Nissen fundoplication should only be “checked” if there is a problem

The life of a Nissen is influenced by many things, such as the amount of vomiting and gagging, and luck. Nissens can last as short as a few weeks and much longer than 10 years

CP/ TK 7-13-10

Approved byClinical Advisory Board (CAB)

Answer is checked and valid for

Find other pages that share the same topic as this page Pain and Behaviour 10 Pain and Behaviour 15 Growth in Childhood 2 Growth in Childhood 15 Growth in Childhood 1 Feeding and Dental Difficulties 5 Feeding and Dental Difficulties 50 Feeding and Dental Difficulties 1 Self-injurious and aggressive behaviour 3 Self-injurious and aggressive behaviour 14 Self-injurious and aggressive behaviour 2 Mouth, nose and throat 14 Sensory processing 2 Reflux 3 Reflux 37 Reflux 1 Cognitive and behavioural characteristics in CdLS 2 Cognitive and behavioural characteristics in CdLS 9

Recommendation(s)

Reflux

R32

Consider always gastro-oesophageal reflux disease (GORD) in any individual with CdLS owing to its frequency and wide variability in presentation, which includes challenging behaviour.

R33

Modification of nutrition and proton pump inhibitors (PPI) are the first-line treatments of GORD. Anti-reflux medications need to be used to their maximum dosage. Surgical interventions for GORD should be limited to those individuals with CdLS in whom nutritional and medical treatments have been unsuccessful or airway safety is at risk.

R34

If GORD symptoms persist, endoscopy should be strongly considered whilst an individual with CdLS is still in paediatric care.

R35

Surveillance for Barrett’s Oesophagus needs to be discussed with and decided together with the family, balancing the potential gain in health and burden for the individual with CdLS.

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Do you have a question you would like to ask?

Ask a Question

Do You urgently need help? Contact the CdLS Foundation USA, Our Staff!

Life Span of Nissen Fundoplication

Question

Answer of our experts

Recommendation(s)

Legal Disclaimer

Do you have a question you would like to ask?

The World Federation of CdLS Support

Latest news

Useful links

Partners for our communities