Ask the expert

tada

Tethered Spinal Cord


Question

Is a tethered spinal cord common in CdLS? My son, who has CdLS, also has a tethered spinal cord. Our Neurosurgeon did not think that he had ever known of a case where a child who has CdLS had a tethered spinal cord.

Answer of our experts

It seems that there may be a higher incidence of such spinal cord things such as tethered cord or occult spinal dysraphism in CdLS. I think we need to look more formally at this. However, treatment for a tethered cord in CdLS would be no different though, e.g. surgical release.

CB/ TK 7-13-10

Answer is checked and valid for
us
Find other pages that share the same topic as this page Autonomic nervous system

Recommendation(s)

Autonomic nervous system

R47
Seizures in individuals with CdLS should be treated using the general management schemes.
R48
An MRI of the brain should be considered only if the individual with CdLS shows neurological signs other than microcephaly (smaller than normal head).

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Do you have a question you would like to ask?

Ask a Question
Do You need help **urgently**? [[Contact the CdLS Foundation USA, Contact Us>>WaihonaPartners.USA.emergencyContact]]!