CdLS World Federation

All over the world people; Parents, Sisters, Brothers, Family, Doctors, Caretakers, Educators and others, get together in small groups. These small groups are about Cornelia de Lange Syndrome, that's what unites them. Many of these groups have united in the federation; CdLSWorld. This is what we are: a federation of support groups from all over the world!

 Support

You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

 Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.