CdLS World Federation

CdLS World Federation

All over the world people; Parents, Sisters, Brothers, Family, Doctors, Caretakers, Educators and others, get together in small groups. These small groups are about Cornelia de Lange Syndrome, that's what unites them. Many of these groups have united in the federation; CdLSWorld. This is what we are: a federation of support groups from all over the world!

Support... Support

You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

PanelL2.png Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.