What is CdLS?


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CdLS is a rare and complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? We aim to provide some answers.

What is CdLS

Cornelia de Lange Syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges and affects both genders equally. CdLS does not discriminate - it’s seen in all races and ethnic backgrounds. The occurrence of CdLS is estimated to be 1 in 10,000 live births.

Learning that your child may have CdLS may be hard to hear but by contacting one of the support groups of CdLS World, you’re taking an important step. Staff are available by phone or email to offer support, connect you with other families, and provide information from medical, educational and behavioural experts